Medical Professional Portal - Create an acount to find more information and request resources for patients.
Nebraska Down Syndrome Information and Support Act of 2016
- In 2016, Nebraska passed a law that requires persons who deliver test results with high likelihood or the definite presence of Down syndrome to provide accurate, up-to date information about Down syndrome to families.
- View the Down Syndrome handout which is required to be given at time of diagnosis or suspected diagnosis. This is an overview of information for new and expectant parents.
Healthcare Guidelines
American Academy of Pediatrics Health Supervision Guidelines
GLOBAL Medical Care Guidelines for Adults with Down Syndrome
The Global Guideline is for clinicians and addresses nine medical areas: Behavioral Health, Dementia, Diabetes, Cardiovascular Disease, Obesity, Atlantoaxial Instability, Osteoporosis, Thyroid, and Celiac Disease.
Other Important Healthcare Links
A Board-certified medical geneticist, Dr. Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital.
Human Development Institute - University of Kentucky
Free Training for Medical Professionals about best practices for delivering a Down syndrome diagnosis.
