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The Down Syndrome Association for Families of Nebraska is committed to providing support and a positive vision for the future for individuals with Down syndrome, their families, friends, educators, and professionals who share in their lives. Our efforts include:

Family and Age-based Networking

  • Hosts educational meetings and parent coffees
  • Publishes a local monthly newsletter
  • Hosts recreational activities for families
  • Provides scholarships for parents attending regional and national conferences regarding Down syndrome
  • Lil’ Stars Activities (4 times per year): provides social events especially for our member families with children ages 0-5 (ex. Playtime at the Ager Play Center)
  • Super Stars Activities (4 times per year): provides meaningful social events for school-aged children - focusing on fostering peer relationships for the individual with Down syndrome

New Parent Support

  • Creates and distributes "Brand New Day" New Parent Packets for all Lincoln hospitals and doctors offices with an included fantastic resource book, plus a pending updated virtual copy for distribution across the state
  • Acts as a contact for Nebraska with the National Down Syndrome Society and the National Down Syndrome Congress
  • Coordinates networking of members and new families as requested
  • Works to link families who have children with Down syndrome across the state

Medical Outreach

  • Played key role in passing LB891-Down Syndrome Diagnosis Information and Support Act, then collaborated to provide content which Nebraska Department of Health and Human Services now offers statewide

  • Outreach visits to OB-GYN, Perinatal, Maternal-Fetal Practices; Labor and Delivery and NICU Departments; and Pediatric Practices throughout Lincoln and the surrounding communities

  • Presentation to Medical Resident Program

  • Support materials for MDs, RNs, and prenatally-diagnosed parents

  • Resources on diagnosis of Down syndrome

Community Benefits

  • Hosts Walk to fund raise and promote awareness.

  • Donates numerous books to the Lincoln City Libraries & the Lincoln Public Schools, which provide accurate and positive information regarding Down syndrome
  • Provides parent speakers to various classes and events held throughout Lincoln
  • Provides a forum for educational speakers on issues regarding Down syndrome including Audiologists, Physical Therapists, Speech & Language Pathologists, Dietitians, and representatives from state governmental agencies
  • Donates to organizations providing benefits to individuals with Down syndrome


Down Syndrome Association for Families of Nebraska

 a 501(c)(3) non-profit organization


Mailing Address: P.O. Box 57362 

Lincoln, NE 68505

Phone: 402.421.1338

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